Sleep Study..Studio del sueno!

It look scary but is wasn't so bad. We had to have another sleep study to check Tarek's sleep Apnea, like so many moms know 45% of children with down syndrome has OSA, that mean almost half, and so many are not receiving treatment because the parents don't know about it maybe. We tried before but with tarek sensory issues was impossible to keep all the cables in place because he was pulling them out. We arrived at 8:00 at Primary children Hospital .The staff was really nice and they were able to put all the cable. I could see that tarek was freaking out with the cables around his ears but he managed to keep them there. Well to make him sleep was the problem. We watched Nemo......I sing thousands of song.......I scratch his back.........told him stories......moved to the other bed.......and nothing......tarek continue telling me HOME HOME......took tarek 2 hours and 1/2 to fall sleep. Then the monitor alarm started to make horrible sounds all night long,every 15 minutes!!!!!! I couldn't sleep at all.I keep looking the watch and minutes turned to hours and 6 am looked so far away. I wish I was able to read the waves in the monitor to know if tarek was breathing well or not. Finally they came to take the cables of and we were in our way home. Please remember to ask the nurse if you are doing the same test to put a lot of alcohol to remove the cables and the glue, they forgot I think so,tarek was crying and I had to complained and of course they were not so happy about it. I will know the results in 2 weeks, I hope he is getting better. Here are the pictures! and some information about sleep apnea.

Apnea (literally, "without breath") is the term used when someone stops breathing for very short periods of time, usually 10 to 20 seconds. It's termed "obstructive" when respiratory efforts continue, such as movements of the chest. It's termed "central" when all respiratory effort stops.Symptoms of Obstructive Sleep Apnea (OSA) are: snoring, restless/disturbed sleep, frequent partial or total wakenings and daytime mouth breathing. Some children with OSA have odd sleep positions, often with their neck bent backwards, or even in a sitting position. Some children with OSA sweat profusely during sleep. In adults, there is an association of obesity, but that's not a common association in children. Some children will have daytime grumpiness or sleepiness, but it's not common. Some children may have noisy swallowing as well .If you're unsure if your child has OSA, the way to test is through a sleep study, also called polysomnography. This test is performed overnight in a hospital .The treatment of OSA is usually removal of adenoids and/or tonsils.In adults and children in whom surgical treatment has failed or was not indicated, one therapy is "continuous positive airway pressure," or CPAP. This is administered by a nasal mask or tube during sleep. The tube/mask administers air with an amount of pressure designed to keep the airway open.One final note about adenotonsillectomies in children with DS: this should not be considered day surgery. Studies have shown that after T&A's, children with DS have longer periods of decreased oxygenation and a slower time to recovery.