Monday, March 20, 2017

Tarek / Autism / Anxiety / Buspirone / Improvment


After the big fail of " Geodon " and "Abilify"  we were a little less optimistic of trying any other medicine due bad side effects and little improvement. But tarek was getting more and more distress, more screaming, more OCD episodes, less talking and more and more difficult. So by the advise of his Psychiatrist we tried one more time a new medicine called "BUSPIRONE" that in some cases it was given great results in children with dual diagnoses. BuSpar (buspirone) is indicated for the management of anxiety disorders, such as fear, tension, irritability, dizziness, pounding heartbeat, and other physical symptoms.
 By our surprise Buspar was the medicine that had been changing Tarek life in a positive way. He is taking it in small doses of 10 mg in the morning and 10 mg at dinner time. Lately he is trying to participate in more  social activities, less anxious going into small places, doing much better in school ( no complains in 2 months) , a little more verbal, playing again with his toys and lately inviting his Step dad to play with him. he also had been trying new foods and drinks, look less stress and sensory overload, his screaming episodes are less often and short, he smile more and more and the best of all HE SEEMS MORE HAPPY.
 It is always difficult try to resolve this puzzle but I can say with Certance that Tarek is doing much better since we start on Buspar  and we hope day by day he overcame those fears and his life get easier and happy.

We love Tarek.
 

Saturday, February 25, 2017

Transfer day..January 18 2017

 sometimes signs are everywhere!  snowflakes where greeting me in my way to the airport.
we flew from Utah to Newport Beach.

 And on a Wednesday we transfer our frozen snowflake in HRC fertility clinic with Dr Potter.

A picture of the 3 of Us !!!
Now Bed rest for 3 days and wait for the Beta in 2 weeks !!!




Monday, January 2, 2017

Tips para inyecciones de Lupron y estrogeno !!! ouch#

Cuando me hicieron con mis super poderes al parecer se les olvido poner en la lista "Cero temor a las inyecciones" porque veo una aguja y me hago chiquitita como una pasa! Asi que para las otras Superwoman que son Regias y Fantasticas como yo  /pero in poco cobardes para las agujas les dejo estos Tips para que los pinchazos sean menos dolorosos.
LUPRON INYECCIONES: nueva en este mundo del IVF me imagine que las inyecciones serian esporadicas y al recibir mi Protocolo de medicinas me encontre con la gran sorpresa que tendria que pincharme 29 dias en mi lindo y arrugado estomago. Despues de un catastrofico primer dia les doy mis mejores tips.

1-Siempre enfriar el area con hielo por 5 minutos
 2-Pinchar sugetando la inyeccion como in dardo

INYECCIONES DE ESTROGENO O PROGESTERONA: las inyecciones de estrogeno son cada tres dias YAY!!! pero en la parte superior del gluteo.

1- Aplicar por 20 minutos lidocaine de 5% cubriendo con plastico. Yo consigo la mia en Amazon .com
2- Aplicar Hielo por 10 minutos
3-Tomar la piel entre dos dedos y luego pinchar tomando la inyeccion en forma de dardo
4-Aplicar calor en el area y suavemente masagear
5- Abrazarse y decirse algo lindo, esto de los pinchazos es in proceso estresante para los dos y no podria existir una Superwoman sin in Superman!








Monday, December 5, 2016

Dual diagnosis of Down syndrome and Autism

Last month after many many  years of  questions we got one answer Tarek has Dual diagnosis of Down syndrome and Autism. We tested Tarek twice during struggling years, but the answer was always the same "Sensory issues" he was getting so sensory overload that Sensory disorder was ruling his life.
I knew Tarek was different...I knew my son was struggling...I knew that Tarek was under the spectrum and that is why I never stop looking for answers. But the symptoms were overlapping with other conditions(OCD, Depression, Sensory integration, Mood disorder and others) and it made it difficult for an specialist to see it.
Had been an adjustment time for me..to be honest I still cry for it, for some crazy reason it is way more easy to deal with Down syndrome than Autism , in some way I feel that I had been getting a Master degree and getting ready for my PHD in Down syndrome and now they inform me I'm taking elementary courses for "Autism".
Everything in the Spectrum for me is "UNPREDICTABLE" ,meltdowns, screams, anxiety, alarms, people, stores, food, communication, awkward social interactions ; it is a1000 piece puzzle that you don't know where to start.
I'm relieve at the same time, finally I have an explanation of Why Tarek behave this way, and  in some weird way I feel validation that I wasn't a bad Mom! that those behaviors are not a product of bad parenting, just his way to express frustration.
I'm jealous of parents that have children just with DS...silly me....just writing it sound so wrong but it is true. Had been difficult... had been painful...I'm exhausted!!! but I'm incredible GRATEFUL that today we have answers and soon treatments, and 2017 will bring new therapies , ABA classes, behavior specialist, new IEP goals, more laughs, less meltdowns and more speech.

So I welcome with open arm My first years in Autism School, I hope my Tarek get the best in this journey and together find solutions.

Tuesday, September 13, 2016

Adopcion de embriones, el milagro de adoptar una vida !


 Hasta algunos anios atras debo contarles que nunca habia escuchado acerca de "Embryo adoption", cuando empeze a leer acerca del tema todo me parecia como una pelicula de ciencia ficcion, disponible solo para personas con mucho dinero, sin ninguna opcion de tener hijos propios por motivos de infertilidad y con una sensacion de frialdad y Tabu. Fue una opcion sugerida por nuestro Especialista despues de perder 2 bebes, asi que en mis noches de insomnia me incorpore a un grupo privado en facebook "EDA" y para mi sorpresa me encontre con miles de mujeres viviendo el proceso de adopcion desde que estos bebes tienen 3 dias
 de vida. Fue como entrar a esas fiestas sorpresa una de esas que tienen una Cortina oscura y pesada  a la entrada y al atravesarla te encuentras con lo inimaginable, con un lugar inesperado que sacude tus sentidos y emociones y no lo puedes dejar. Escribo este post pensando en mi comunidad Latina que quizas desconoce el mundo de la adopcion de embriones al igual que lo desconocia yo, asi que aqui les cuento lo que yo he encontrado.

La opcion de adoptar un embrion  puede dar a los padres la oportunidad unica de vivir el proceso de embarazo juntos, de crear esa coneccion desde el momento del FET (frozen embryo transfer) y participar del nacimiento del bebe.
Respecto al costo, comparado con una adopcion normal en USA el costo es sustancialmente menor. Adopciones tradicionales en Usa cuestan alrededor de $30.000 y Embryo adoption alrededor de $8.000 o menos. cuesta la mitad de un ciclo de IVF(16.000  y comparado con la donacion de ovulos(25.000  cuesta la tercera parte.

Embryo adoption beneficia a un grupo grande de parejas que no hubiesen podido vivir la maternidad de otra forma; como por ejemplo parejas mayores de 40 anios, parejas infertiles, parejas que han sufrido cancer, parejas que no ovulan o la calidad de sus ovulos no es tan Buena, madres que estan en menopausia, padres que tienen problemas geneticos, padres que sufren de repetidas perdidas, padres que tienen una baja cantidad de semen o ya se han echo una vasectomia, madres solteras, parejas del mismo sexo, parejas que simplemente quieren adopter y vivir la experiencia de la maternidad.

Ninos nacidos en este proceso son llamados "snowflakes" copitos de nieve, son vidas congeladas , esperando por padres y un futuro. Los invito a informarnos acerca de la adopcion, a difundir el tema y apoyar a los padres y familias que estan viviendo este maravilloso regalo .